Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Monday, December 28, 2009

Where to start?

A couple of months before  Hubby received his Diagnosis of Lewy Body he was given 2 possible diagnosis'
I wanted to know as much as I could about them. What did we have to look forward to, how do we fight it, Ideas for a better quality of life, how much time did we have left. He on the other hand didn't want to know anything. He was told by his Neurologist both of them had to do with a thinking disorder.

We talked about it only once. He told people that he has a thinking problem and he seems satisfied with that.
On some occasions he has looked at me and said "I'm just crazy, right?" And I have assured him that he was not crazy "so don't think you can get away with just anything." We laughed about that.

I on the other hand dove head first into wanting to know everything I could.
I even joined an on line spousal support group and read years of back posts. What a treasure trove of information and support from those been there doing that or done that!! A blessing for certain!
I think knowing a little bit before the official dx came allowed me to absorb some of the shock and say, "OK, I know where to start." I just seem to be starting over and over again. With Lewy it's 1 step forward and 2 back or 2 forward and 1 back. Just when I get used to one thing something else changes. We never know.

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