Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Sunday, February 5, 2017

Chronological PDF to read

Thief Lewy Body Dementia Chronological PDFOn Saturday, Feb 11th, 2017 my husband will be gone for 3 years. I'm still actively trying to educate about Lewy Body dementia and offer practical caregiver support.
On more than one occasion I have been asked to make this blog into a PDF for chronological reading. So the blog is still helping as I felt it would. I have tried to do so over the course of time but reality is that re living the experience has been difficult so it has been a slow process. I am pleased to say that I have finally finished and it can be found here. Please feel free to share.
Thank you,
Kathy
Thief Lewy Body Dementia Chronological PDF

8 comments:

  1. Dementia care provides you with professional and compassionate aged care services at your home.We believe in providing better home care services.

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  2. My dad is suffering with LBD as we speak. So brutal and so cruel. I've shared your journey with my mom. I hope this helps us both understand a bit better.

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    1. Hi Alicia,
      Thank you for taking the time to read and share the journey. I am sad to know that others must go through this but I do hope that you and your mother find some useful information that helps make caregiving easier for you and for your father. You and your mom are in my thoughts.
      Kathy

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  3. I'm not sure how interactive any of this is anymore, but my mil was also taken for testing to rule out normal hydrocephalus, which I'd just heard of, which was ruled out, which at the time thought was a good thing because thought if it was abnormal that was something could do something about, but they said it was a misnomer, normal didn't really mean normal, it was something they could something about so guess was disappointed

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    1. Hi, Donna. Thank you for taking the time to look through the blog. Admittedly it starts off choppy because I never had a blog and I wasn't sure what I was supposed to do. As time goes on through it I hope you find something that can be useful.
      That was my intention for starting it and as long as I am able I will continue to keep this blog for anyone wanting to learn about Lewy Body Dementia.

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  4. wish I could go back and edit these like we do FB comments, but somehow didn't realize had to have the spinal first to rule out the hydrocephalus, thought they ruled out mil's with imaging to determine about doing the spinal then see about the shunt

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  5. Man every time we think we have it bad someone is always going through things we often do not think about

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  6. as someone who works in the health field this was very nice

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