This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Showing posts with label Thief. Show all posts
Showing posts with label Thief. Show all posts

Saturday, January 16, 2010


Lewy Body Dementia is a Thief:

Lewy is stealing what precious time I have with the one I love.
I believe it already stole 5yrs of my life and a huge chunk of my heart.
Every day a little bit more is missing. I can't stop it.
Oh how I wish I could.

I want my happy ever after but I know it won't come.
The best we can do is slow it down as it heads for the door. I grab hold and push with all my might just to wind up with skid marks on the floor as it departs into the eternal nothingness.
A vortex of swirling and confusion.

Lewy is stealing my Joy. Oh it thinks it's replacing it with humorous incidents and I won't notice the difference, but I do.

Lewy is stealing my passion. Most of the time my loved one has no idea who I am or what my relationship is to him. As such I find myself putting up emotional barriers and diverting most of his advances.

Lewy is stealing our precious memories. My loved one and I can't share the past and reminisce about our lives when time and space have no meaning.
So in the silence we sit.
The deafening, overbearing silence.

Lewy is stealing my space. How small my world is becoming knowing I can't leave my love one unattended.

Lewy is stealing my security. Now I must be the brave conqueror and protector.
My tag team partner is down for the count.

I hate Lewy. Lewy takes and gives back just to take again. Such a cruel heartless disease.

The only thing Lewy hasn't stolen is the love I have for my loved one.
Lewy can not take that away from me. I love this man beyond reason.
I hope and pray that  if Lewy succeeds in stealing all the memories from the brain of my loved one, the memory of my love is reminded daily by God to his heart.