This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Wednesday, March 31, 2010

March Lambs? One can only hope

After our horrible day yesterday the evening wore on like drudgery.

Uncertainty loomed everywhere. How was I going to fix this before the guardianship hearing? That was still a month away and bills would need to be paid, groceries bought etc etc. I had to contact the people that I had written checks to informing them that there was no account any longer. Checks would not be valid. How embarrassing.

After making several calls and canceling automatic payments I retreated into game mode when we got home.Hubby made me cry last night though. He wanted to talk to me about his dementia. He said he just didn't understand it. He doesn't think there is anything wrong with him and everybody is acting like there is. He wanted to know what his Lewy bodies would do to him. We talked for a while and he retreated to his room. Later he came and asked me where the bank check was. I had no idea and told him so. He looked at me with suspicion. Later with bank check in hand he told me he wanted me to take it and to open an account in my name.  He never signed the back of it and walked away with it so we will see if he remembers today.

Returning he sat on the step and told me he just wished he could die. I burst into tears. I held him tightly for a long time. He said it wasn't fair for me the way things were. I tried hard to assure him that I was trying to do everything for his best interests safety and comfort. I wanted us to have a really good rest of our lives and do the things we talked about doing. He then informed me he was hungry so I cooked him something to eat.

I truly believe that Lewy is the meanest form of dementia. My husband is still in there. He just can't get out.  Lately, for the most part, he has had some fairly good physical days. He has even had some good cognitive ones. That doesn't mean the cognitive ones have been easy. They just add to Hubby's delusions of his health issues. Evenings are the most difficult. One minute he can be carrying on a perfectly fine conversation and the next he's talking to me like he isn't sure who I am.

It must feel like living a nightmare every day and it breaks my heart to know, that somewhere in his deepest part of his heart, he knows.


  1. Kathy, I'm sorry for your bad days and nights.

  2. Oh Kathy, my heart breaks for you during these tough days/times. Hang in there, girl.


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