4 days of bed ridden , 3 days no food, 2 days no water to speak of.
Cognition shot, mobility out the window, I prayed over Hubby, I cried
over Hubby. I held him a lot and kissed him. I wondered if it was his
ending. I wanted to make sure he knew how much he was loved. I asked for
prayers and strength to face what was ahead. The strength and calm
came. We rested.
Then this morning at 3am, youngest daughter
found Hubby standing in the kitchen. He didn't know where he was or how
to get back to our bedroom so she came and woke me. I got him settled
back in bed and woke at 7, so did he. He sat up on the side of his bed,
he ordered something to eat. I tried to get him to choose something
lighter on his stomach than a sausage sandwich but he was having no part
of it so I made one. He ate it all and didn't even share with the dogs!
Today he's had water, tea, cola, juice. Today he is walking his
normal pull himself along. Today he got cranky with me when I offered
him his afternoon meds. He didn't need no meds right then. 2 hrs later
he fussed at me because he needed them and I hadn't given him any all
day. Today he annoyed me and in some way I was glad. What a difference
Lewy can make in a day!
I learned something through this
experience. I'm not as organized for supplies handy as I feel like I
need to be. I found myself flitting around to collect the items I needed
for Hubby's care. Tomorrow I'll reorganize and make a one stop location
for things we need, gloves, pull ups, bed pads, sheets, baby wipes,
trash bags, etc. All of these we have but they were in various places
throughout the house. I need this to be more efficient.
Another
issue that developed was I noticed the start of a pressure sore on
Hubby's heel. I try so hard to watch for these things and ward off
potential problems so when I saw it I tried to beat myself up with some
guilt. I was reminded that these things can happen no matter how much I
check. I found it very early and am taking steps to find relief for it. I
have no reason to feel guilty so I'm not going to. I have a call in to
the Dr and someone was supposed to call me back with a solution or
suggestion. I'll call again tomorrow. Until then I have his feet
elevated off the mattress and am putting solarcaine on it. A store
pharmacist said it was for sunburn but had aloe and an anesthetic in it
to help with pain. I bought a bottle.
So there we were and here we are, and I have no clue where that is.
This is dementia, it's not just a memory problem. My husband was diagnosed with Lewy Body Dementia in Oct 2007. This is our story. The ups and downs, the sorrows and joys. A non clinical view of living the Lewy life. Our story ended Feb 11, 2014. Lewy Body dementia hasn't been cured yet so until it is, this blog will be timeless in it's approach to caregiving, love and faith. It's a daily approach to those things.
Disclaimer
This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.
This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.
This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.
Showing posts with label pressure sore. Show all posts
Showing posts with label pressure sore. Show all posts
Monday, September 9, 2013
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