This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Thursday, May 27, 2010

Someone Hit The Brakes

"What time will the brakes go up in the morning?"


What time will the brakes go up in the morning?"

Hubby I have NO idea what you are talking about. SO he repeated it a third time with an annoyed tone.
This was such a random question that had nothing to do with anything on TV or anything we had talked about very recently. I was confused.

I asked him to explain what he meant by brakes.
OK apparently to Hubby I was a complete idiot as he started telling me, in his condescending tone, what brakes were.
Of course that tone didn't set right with me so again I asked what were the brakes attached to.

Hubby just stared at me and said BRAKES!

Seeing his frustration in trying to communicate I started the 20 questions. It usually helps but then Hubby got glass eyed and refused to talk about them anymore.

The rest of the evening went along fairly well. No more mention of brakes.

I do wish I would have had a set of brakes for Hubby though.
We have had some tough nights. Plenty of confusion, nothing severe, just the normal house stuff. Me stuff.
I think it's odd that I now consider that all normal.
The "other people" were here. (Of course they show up AFTER the yard is mowed)

Hubby also informed me that he doesn't think us living together is going to work out.
When I asked him why he said it was because we just want 2 different things.
He asked if I thought we could find someone that would move in the house with him.
To which I informed Hubby that I wasn't moving out and he said "Oh, OK." just like that.

Last night Hubby took a couple of falls, one was fairly bad and he is going to feel the effects of it for a few days. The inspection of body parts and their ability to move revealed nothing broken, just skinned and cut. One broken vein under his arm caused a pooling and raising of blood under the skin but it never got bigger or spread.
This morning it was completely flat but it will make a huge bruise.
My poor Hubby. I wish he would stay still at night.
 Incontinence issues keep him bathroom hopping.

Hubby has also started a new thing I am not too sure I am happy with.
This once starched and pressed, no hair out of place man has turned into the underclothes wearing weekly bather that barely wants to shave. Now he has decided clothing optional which has me saying hmm I don't think so.
He thinks it will help with the incontinence and keep his underclothes dry and he will not use as many incontinence aids.
He doesn't think about the sheets and the floor.

Mopping the floor and doing laundry at 3AM isn't really my idea of a good night sleep.
That chore added to the night time wakings and the jolted wide awake falls makes for brain sludge the rest of the day.
On the positive to that, I DO appreciate my washing machine and dryer :)
singing: You spin me right round baby right round... ;-)

Tomorrow I should get a 4 hr respite. YAY! I believe I shall find a friend to lunch with.

You know, the days all used to merge together for me. One was as interesting as the other. With the 4 hr respite now, Fridays will have a whole new meaning. I'm also hiring private sitting care for a couple of times a month. Back to back with the aide may be just enough of a recharge break I need for me! Look out Fridays!! :)


  1. Kathy, I'm sorry you have such crazy nights. Lewy is one wild ride. You are one strong woman!

    How fortunate that you have respite tomorrow. I will think of you having some peace and time to yourself.

    The people are here all the time too. My mom gets mad if I sit in their chair or don't feed them food.

    I think it's the full moon causing our LO's to be crazier than usual.

  2. You know Susan, I NEVER even considered the full moon! You may be right.

    Hubby never gets upset about the people. I never take care of them and they know better than to get in my way. ;-) I have actually told him that there is not room for them in our bed and nobody better be here when I'm in my pajamas. They seem to stay out of the bedroom. I think he likes knowing I won't take any time caring for anyone but him. LOL!!

    OH, I will definitely enjoy my time away.

    Glad you guys got to swim. Sounds like you had fun :)


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