This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Saturday, May 8, 2010

Things that made me smile

Looks like we see light at the end of our financial tunnel. Now we can get back to "our normal" whatever it is.
I purchased a file folder to keep accounting records of Hubby's finances. Something I am now required to do by law since being appointed as his guardian. No biggy.

Income FINALLY did just that, came in, YAY!! Normally grocery shopping is considered a HUGE headache for me. This time I welcomed the opportunity to do it. The biggest challenge was keeping separated what I would consider as my food and his food. Milk was easy as we drink 2 different kinds. I think I shall save myself the future headache though and shop 2 different days. A HIS day and a HER day LOL!!

One of the core features of Lewy Body is hallucinations/delusions. Those things are becoming more and more common place in our our life now. Where they were once dismissed or hidden by Hubby they are now just becoming a fact of our life.
One incident in particular that got me tickled was the other evening, while watching TV in bed, Hubby shuffled/stumbled into the kitchen to get a cola. (He makes me nervous walking around) On his return he was passing in front of the television. An episode of "House" was on and in this particular scene the "Drs" were pushing a gurney down a hall, they turned and headed straight for the cameras.

Hubby was startled by this and he jumped back as if attempting to move out of the way.
(I was surprised he didn't lose balance and fall!)
The "Drs" turned another corner and Hubby looked at me and said with agitation in his voice "Did you see that?! They almost hit me!"

All I could reply was "Good thing you moved out of the way" I was laughing on the inside though and it still makes me smile when I think of it.

That sounds bad on my part but the delusions are part of Hubby's reality. No amount of convincing is going to change his mind as to what he see's or hears anymore.
There are times he can still sort it out. Normally I would not reinforce the hallucinations. I try to state matter of fact what is or isn't. Mostly isn't. I have been glared at sometimes by Hubby's distrust of my accounts. At this particular time I chose to side with Hubby. It had no real relevance. I was sure he wouldn't even remember the next day. He didn't or if he did, he never said anything about it. It served my purpose better to be sympathetic to Hubby's "near mishap". He crawled into bed and snuggled up.

Last night we had a cold front whip through with the winds. Hubby and I were settling in for the night and he said "It's gonna be cold"
I agreed
Hubby got up from the bed and retrieved his housecoat. He spread it out across the bottom of the bed for his feet. When he finished doing that , he went to the closet and retrieved his other housecoat. He shuffled/stumbled to my side of the bed and spread it out for my feet.
I considered it a precious and priceless moment.
I think what made it stand out the most was, the Parkinson Type symptoms associated with Lewy Bodies make his movement stiff and slower.
Hubby shuffles when he walks and since his movements are not fluid it takes a longer time for Hubby to do anything.
He carefully spread out the housecoat across my feet and looked so pleased that he was taking care of me.

I was just as pleased.

It's these moments that erase ALL the bad ones.

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