This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Monday, March 7, 2011

Another Life Event

Hubby and I have been anxiously awaiting the birth of our baby's baby!

 Mr Aiden Connor was born at 4:09 AM March 7.
22" long and weighed in at 9 lb 9.6 oz!!!

I don't know if I can stop smiling :) And you may be thinking, awww, first grandbaby? Nope!!!
The feeling never gets old!

 Hubby and I had been talking about baby's arrival for a while. We made plans on going to be there. It's a trip of 1 1/2 hrs and with Lewy Body Dementia, trips of any distance are becoming more difficult to make. I wondered if an overnight hotel room would be our best option as babied do as they please for coming into the world. We were offered a place to stay at our daughters but I declined as some of Lewy's needs are more than I wanted to burden our daughter with (incontinence and leaking pull ups when Lewy won't rise to go to the bathroom) and their home isn't handicapped accessible as most homes are not. Unfamiliar territory is always a challenge for Lewy and Hubby is easily confused.

Upon our arrival to see daughter I quickly changed plans and decided we were not leaving her. We stayed in the room at the hospital all night.

Over the course of the last few weeks hubby has been pretty confused. He has his good days and a GREAT Sat in there for which I feel truly blessed!
Decline with Lewy Body Dementia, as with any dementia is inevitable and I MUST remind myself that Hubby can not control what is happening to him but I can control how I react to him. I'm not always the good wife, Some days I should be awarded with the "Good Wife" statue and other days I should have the title stripped away by force and be beaten with it. That's life though.

So our trip to see our baby have her baby happened. I didn't get to stay as long as I wanted. (I suppose short of having them live in the house with me is not long enough LOL) Issues cropped up with Lewy and it was in our best interest to get Hubby home and make him comfortable. The trip and the stay has taken yet another toll on Hubby but the GREAT news is that we both got to be there for our newest grandchild. Hubby was able to participate in another life event and for that we are so very blessed. Lewy didn't steal that moment!
Pappaw said "Hello there Big Boy!"


  1. Congratulations... this story brought tears to my eyes. I LOVE the picture. Thanks for sharing Grandma!!!!

  2. Congratulations to you and to your daughter! A new baby brings a special joy. Have read your blog regularly and am in awe of all that you do. My husband has parkinson's and dementia and I don't think I could take him to a different environment and take care of him. God bless you.

  3. Sue,
    Thank you!! He's a beauty for sure! I was so happy to share :)

  4. Anon,

    Thank you for taking the time to read my ramblings. :)
    I'm sorry to know about your husbands condition. This trip made me realize that going anywhere with Hubby may be a "rabbit out of a hat" trick now. But I learned something and we will adjust our lives accordingly. Please know that you are not alone in this walk you both must take.

    Thank you for the Congratulations also!! We are so very happy :)

  5. Aidan is beautiful! I'm so glad you got to be there for his birth.

    I'm not a grandma and have no human children of my own, but my mom was excited about each and every one of the 6 grandchildren so I understand your excitement. She never tired of the babies!


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