This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Saturday, March 26, 2011

"Are you looking at my poptart?"

The other day I woke to sounds of 2 of my grandsons having breakfast.
The 3 year old does not wake up like his 5 yr old brother. 5 yr old is mild mannered and cheerful.
3 yr old is, well, like me. Cranky before I have had a cup of coffee.

As I lay in my bed thinking that, yes, I was alive and yes, it was ok to be that way I heard 3 yr old say in his grouchy whiney annoyed tone, "STOP LOOKING AT ME!
5 yr old assured that he was not looking at him. Then 3 yr old asked in a much sweeter tone, "Are you looking at my poptart?"
This comment made me smile before my feet ever hit the floor. Some days I'm not so grumpy when I first get up.

Today is a non grumpy day.
Today I had a plan. I made arrangements to visit with someone on line to talk about my experience with caregiving for Lewy Body Dementia and my decisions to blog.
I was actually looking forward to it AFTER I mulled over the invite. At first I was hesitant. What if I said something stupid? I can backspace stupid in print, but you can't backspace actual words. Many times I wish I could. sigh

Today I set my alarm. I didn't want to sleep in and not have had my coffee before the program started.
I always get a little nervous when I make a plan. Especially these days.
I prayed that I would be able to devote 30 uninterrupted mins.

I asked that if immediate caregiving needs had to be met I had time to accomplish them.
Ask and ye shall receive. Hubby woke and his immediate needs were cared for. Bathroom, bed linens, coffee, breakfast. He was settled.

Hmmm, I forgot, I took responsibility for the 2 grandsons.
Please Lord, let them rise early enough to be cared for and settled also.
5 yr old woke cheery and with a good morning. Breakfast served.
3 yr old woke grumpy but manageable. Breakfast of several different types offered, rejected, offered once more with a glare then served, shirt changed, mood better.

The boys and I started watching a movie last night that we did not finish and at their request I continued it for them. Boys settled.

Niece was still in her room sleeping, so, niece settled.

At this point I had 5 mins wait for my phone call. I grabbed a cup of coffee and a poptart to settle myself in a quiet place in a comfy chair. I realized that I have neither of these things! I chose a random chair in the quietest part of the house yet close enough to hear Hubby if he needed me. Took a bite of poptart then decided I didn't need a poptart on my teeth or gumming up my mouth! Ran for a drink of water! (I didn't want to drink all of my coffee up) Then I had to use the restroom!! I had 2 mins before my call!!
Ever try to use the bathroom in a hurry? yeah, wasn't working, relax, ahhh.

Pulled, zipped, washed and settled and took the time to bow my head and ask for the words to come freely and clearly whatever they were. Prayer answered.

The visit went off without any issues :)

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