This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Sunday, May 22, 2011

Whole Lotta Shaking Going On

Hubby is experiencing a sometimes strange behavior on a more frequent basis lately and I'm rather stumped by it.
A behavior I had always been chalking up to cold chills, due to cold weather and a cantankerous heating unit spitting out cool air during the winter.
Since been replaced, my pocketbook is still screaming.

Hubby will begin shaking like he has a cold chill. He can't control the shaking and asks for a blanket.
I cover him and then lay down next to him and envelope him in my arms until he relaxes.
This may take a few mins to several to get him settled.
I'll release my grip a little and stay with him until his breathing is rhythmic and I feel confident enough to slide out of the bed and leave him.
Some times, if I linger very long I nod off to sleep.
Sleeping on the job.

This behavior has happened before and as I said chalked up to cold weather but now, even in warmer weather, it seems more frequent; especially in the last 3 days or so.
Today he has experienced this 3 times already.

No fever, nothing out of the ordinary for us so illness does not appear to be the factor.

It's distressing to Hubby when it happens.
He cant control his body movements and is unable to respond to me when it happens.
It's distressing to me also because I feel clueless as to how to take care of it more than I am, and my way feels like it's not enough.
Although, I have got a catnap or two.


  1. Is it the parkinson side of LBD?

  2. Oh Kim,

    I seem to forget the Parkinsons type symptoms with this disease! Even though Hubby experiences these types of symptoms daily, like the unsteadiness, stiff shuffling, shaking hands and head etc, I tend to let the dementia over rule and that becomes the focus for problems.

    Thank you for the new vision :)

  3. Isn't it just the craziest illness? My mom shakes and sometimes she has the shivers like you described.


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