Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Thursday, January 26, 2012

More Boys

Last night Hubby needed and asked for assistance with his bed covers.
As I was hovering over him he asked me if there were people in the house.
I answered no, there were not.
This question is common but it came with a different tone for Hubby.
He then stated that he hears a lot of background talking.
I stopped fussing with the blankets and assured him that nobody was here.
I reminded him that hearing voices was a symptom of his Lewy Body Dementia.
I also said that hearing voices or even seeing things like people or animals could happen.
Hubby didn't care for my explanation too much and scowled at me.
I fussed with the blankets some more and made sure Hubby was covered up and warm.
I suppose I was taking too long when Hubby announced that my doing that was bothering him for some reason. He didn't know why or what but it was really bothering him.
I think it was from the scowling.
I backed off and gave Hubby some space and a concerned smile.
The rest of the evening was calm.

Tonight Hubby called for me and when I entered the bedroom he was sitting on the side of my bed.
He had a look of confusion so I asked if he was ok.
His reply was no, yes, I think I just saw grandson.
Hubby asked me if the boys were here.
They are not.
Hubby was very convinced he saw one of them and I assured him that I believed he really did think he saw them and I explained again about his Lewy Body and its ability to make the brain believe something was there when it really wasn't.
Still obviously upset, I asked Hubby if he was okay?
His answer was that he was trying to get a snack from the kitchen but seeing the boy in the bedroom made him have to sit down and make sure of what he saw.
I asked Hubby if he was frightened by it.
He answered no, just confused.
I offered to get a snack for Hubby and he happily accepted.
I asked Hubby to always tell me if he sees something and has questions about it or is frightened by it.
He said he would and shuffled off to his bed.

Auditory hallucinations have been around for a while here.
Some visual but Hubby has always been able to shake them off as, that can't be real, or, tricks of the eyes.
Last night and tonight they had a very real presence to him.
I pray that I will always have the words to assure Hubby and make him happy with an offer of a snack.

Except for these incidents, things here have been fairly smooth and steady.
I like smooth and steady.
Hubby has been in good spirits and calm.
Little to no anxiety.
New pain meds seem to be helping with no serious or odd side effects.  A little more tired perhaps.
I have no complaints
And neither does Hubby
 WAIT-
On second thought, Hubby with no complaints? Maybe a few odd side effects but I can live with them ;-)

1 comment:

  1. As crazy as it sounds, go along with the hallucinations. I found that when I validated her visions she would let it go and we could move on.

    Dream Master worked really well. Do you remember reading my posts about dream master? I learned from another care giver who I read a post awhile ago.

    My mom saw children all the time. She still does. I tell her that I called dream master. He apologized for the trouble, the mom has come for them.

    I found that explaining the symptoms only made her upset... Dream master helped her feel that she was OK and not losing her mind.

    You are in my thoughts.

    ReplyDelete

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