Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Sunday, December 9, 2012

Adventure Seeker

I wrote the following in response to a question by a fairly new caregiver.
He asked how he could make the care of his father an adventure for he and his wife.
I liked my response so well, (sometimes stuff just flows out of my head and sounds good, giggle) I'm posting it as a blog because I think it can relate to others as well as those of us living and caring for loved ones with Lewy Body dementia.

It (caregiving) will be an adventure on it's own, YOU just have to decide the type. Keep your humor, you WILL need it.
Pick and choose your battles.
Don't sweat the small stuff and there will be an overwhelming amount of small stuff.

Find time for you, let your wife find some time for her and together find time for each other. Have a date night even if it's at home.
Sounds like you have a team of 2, add to it and smile LOTS.

Daily write one thing on the calendar that made you smile or laugh, anything at all, try not to repeat. It will be an easy start but will get increasingly hard to do so you will have to SEEK it and eventually you will train your mind to find the positive. Some days may be blank. Try not to leave too many of them.

Ask for advice, others can help you think outside the box. There is a TON of seasoned caregivers willing and able to lend to your list of suggestions. Every person is different, what works for one does not necessarily work for another. Trial and error. There will be lots of error
Don't let things "pile up" Try not to get caught up in the loop of negative thinking. It's too easy of a trap. Say you're sorry, admit your frustrations remember your dad can't help how he is.

Love him madly, even when he is the most unlovable, you won't have to like his actions all the time.

Buckle up! It's a bumpy ride, the twists and turns will make you and your wife bump heads at times. Stay seated and keep your hands and feet and heart inside at all times. You got this!!

1 comment:

  1. Hi Kathy! Joining you for the Caregiving.com Blogging Party! Love this post with your advice for a new caregiver. Good reminders for seasoned caregivers too! :)

    Ina

    ReplyDelete

Thank you for taking the time to word verify comments. I'm sorry that due to Bot Spam the process is a little more time consuming.