This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Thursday, April 22, 2010

Night time feedings, security blankets, needyness and loss of sleep

Sounds like a new parent and baby doesn't it?

Nope, it's not. It's me and Hubby :)

Hubby sleeps so much. Even though he takes a night time sleeping aide he STILL has nighttime house wandering. He can even be in a wake pattern for a couple of days in a row and have the need to completely crash yet still have the night wandering. I am blessed that he never tries to leave the house. One thing in our favor may be that we live in the country so to speak so it's pretty dark and difficult to see at night. That compounded with his poor eyesight anyway may make him feel safer in the house, even if he isn't sure if it is his house or not.

Hubby likes to eat at night also. With no sense of time he has announced to me in the middle of the night that he wants me to make him some Malt O meal.
Umm... NO.
He raids the refrigerator for anything he can find. I am happy he still likes to eat but his lack of movement and limited intake of fluids due to the excess sleeping cause him constipation problems. I can not make him understand that.

I have realized that when Hubby is awake he is very needy. From the moment he wakes until he lays back down he needs me to do this or do that. He never asks, he never has come to think of it, but tells me what he needs or wants.

I need something to eat.
I need this junk fixed (remote) so i can watch that (TV).
My feet are cold. Turn up that thing (heater)
The toilet is stopped up.
I need this blister fixed.
Hey Honey?... (complete silence and conversation never started or if it is, never finished)

Of course I jump and run and tend and do and fix and turn and find and suggest and wait.

At night when I get to sleep he will poke and prod and spat and touch me all night. Making sure I am there. Like a security blanket. And he won't stop until I acknowledge I am awake. Then he starts again when I fall asleep.

My mind and body need continuous hours of sleep. Straight, in a row hours. Not divided up in segments. This broken sleep pattern causes me to have brain fog and irritability problems. I nap during the day but it just isn't what my body needs.

I remember when our children were babies I did the same thing when they first got here. In my head I remember reading it wouldn't last long. I remember some family telling me the same thing even though it felt like forever until they grew out of it. When the next child came the same cycle of crazy sleep occurred and I remembered it wouldn't last long.

I don't have that same feeling now. I don't know how long Lewy will keep my sleep disrupted. I am tired and stagnant. That sounds pretty pitiful but truthful :-0

On a good note...
I'll have to think on that one right now and get back with you ;-)

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