This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Thursday, November 10, 2011

2nd full day

For day 2 I had decided I was going to visit our youngest daughter her hubby and our youngest grandson since it was her day off and they had no plans.

Time in caregiving is a very precious commodity.
I must add that I am blessed to receive 10 hrs a week from a home health service which allows me to run errands and to buy groceries to keep the home running smoothly, or maybe I should say, groceries to keep our stomachs satisfied. Either way it works for me ;-)

Hubby and I live in a rural area so our biggest town for BIG shopping (walmart) is 20 miles away.
Now I wont go into the numbers game for time I'll just say that everything that can be squeezed in needs to be during this gift of aide attendance leaving little left over for personal pleasures like lunch with a friend or coffee, although I do try to work it in if at all possible. I have been known to be squealing tires upon my return to the driveway.

That said, being able to go and visit our children is such a very rare thing and getting rarer every day. Our youngest daughter lives more than an hr away so it was always out of the question to be able to visit with her during aide time. She may as well live a million miles away, I am glad she doesn't though.

So I made the decision I would spend part of a day with her.
I called to check on Hubby and see how he was doing. The Nurse informed me that he was doing well. He was eating well and talking to people. They mentioned that he had been up much of the night and was still asleep when I called. I let the nurse know that was a normal behavior for Hubby and asked that they let him know I had called. I stated that I wasn't sure if calling and talking to Hubby directly was a good idea as I was worried I might upset him but the nurse told me to feel free to call them anytime. I thanked her and hung up.

Then I lollygagged so much that morning that I let time get away from me!! It was close enough to lunch when I arrived at youngest daughters and I was not disappointed with the visit. We all shared a lovely lunch. I carried the baby around (like they had a choice), sent bragging pictures of the baby to my oldest daughter and loved on them all as much as I could. Then returned home.
It was a wonderful day.

After BIL came home from school I took a short nap, fed us supper and enjoyed the quiet of the night.
I also took the opportunity to go out and look at the Moon and Jupiter.

1 comment:

  1. I am so glad that you are relaxing more each day and that you got to see your daughter and her baby. I hope that the rest of the week goes well and that your "hubby" remains content.


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