Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Sunday, January 10, 2010

Lewy Body's Trying Days

Jan 7: Hubby and I were talking about how cold it is and will get. I appreciate cuddling under covers together. :-)

Jan 8: Have to pull a rabbit out of a hat for this daily smile. Hubby slept ALL day and only woke long enough to eat supper and go back to sleep. Happy that hubby had a restful and calm day. :-)

Lewy Body has this very mean way of fluctuating.

Jan 9: The last few days, except one, have been very trying here as Hubby has been "busy" going through ever shred of paper and drawer and clothing item and dish and photo (of course never putting back) in this house.
I THINK he is looking for anything he recognizes.
When asked what he'slooking for he just says looking.
His turn around in cognition has me whirling.

Last night if I didn't know there was a problem with Hubby I would never suspect one, other than the occasional brain farts we all get.

Hubby is convinced that there is nothing wrong with him and that he should be able to come and go as he pleases.
Our BIGGEST hurdle is driving. He hasn't driven in 2 yrs and as of today his car has a flat so it isn't operational and I will NOT help him repair it. That makes me the horrible mean hateful (w)itch that takes care of him only to steal his money! According to him I have him on a short rope and am trying to keep him chained at this house! I told him I would drive him all over the country if he wanted but he could and should not drive. I reminded him that I have asked numerous times for some of his friends to come and get him and take him out for the day or coffee. He agreed I had done that but nobody has ever come :-(

The Neurologist said at Hubby's last visit that was the best he had ever seen Hubby in a long time. Hubby took that as a getting better. Asked about driving the Dr said he didn't believe Hubby could get his license renewed. Hubby ignored that.

I told Hubby that with a diagnosis of dementia I did not believe that legally he would be able to drive.
He said I would not be able to find a lawyer to declare him incompetent and I told him I didn't need a lawyer, just his medical records and a judge if he thought we needed to push the issue to keep him and others safe. Although I would never really want to do that to him.

Hubby sure knows how to push a few buttons and I allowed myself to get engaged in a discussion that became heated and wound up with me in tears all because of the driving.

Then, I had the clarity moment and busted out laughing.
Hubby wanted to know what I was laughing about and I said "Because I'm all upset and trying to have a logical discussion with you and you may not even remember it in the morning and I'll be the only one upset still."

Hubby then decided he was moving out. I asked how he was going to take care of himself. He couldn't even shave himself with an electric shaver, how was he going to live alone?
He decided to show me and went off to shave. He returned to me quite a while later smelling of shaving lotion and said he couldn't finish. I calmly got up and said lets go take care of it and we did.

Wrapping my brain around this HUGE bounce back is very difficult. I wonder how long it will last.

Later Hubby was sitting on the edge of the bed and just fell off. No reason just kerplop.
He took a hard hit to his elbow and arm. I did the normal, move everything and check for damage.
All looks well but I bet Hubby is sore today.
Another oddity was that he just hopped up off the floor like nobody's business.

When I finally went to bed Hubby asked me if I was going to watch TV, I answered
yes. Hubby reached over, took my hand and held it as he fell asleep :-)

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