Disclaimer

This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Monday, January 25, 2010

Week of Smiles 1/18-1/24

Jan 18: Hubby slept ALL day except to eat supper then stayed up ALL night.

Jan 19: Even after a night of no sleep Hubby had a wonderful, physical day. Mentally he was struggling. We went to and enjoyed lunch. Lunch dates are very rare and considered a great treat by me :)
   We ran into an old friend and visited. Hubby kept asking our friend if they knew where we lived. I assured Hubby that our friend did know as he was one that helped us build our house.
  Satisfied in knowing he occasionally joined in the conversation when asked a question but mostly sat quietly eating for the duration of the visit. Hubby told our friend that he is making plans to do some 'things' although I have no idea what those 'things" are and Hubby would/could never elaborate.
  I am happy he has something he looks forward to even if they never come to light.
  Today he is happy and content, just wishes it wasn't rainy :)
  Today, all day, Our world is good. :)
  Now he sleeps.

Jan 20: Could care less about anything else good that happens today. After taking Hubby something to eat and before I walk away I always ask him if he would like a kiss and I remind him that I love him. I always ask if he would like one because most of the time he doesn't know who I am. Once when I attempted to kiss him in front of his aide he backed off. I try not to make the mistake again of putting him in an "awkward" situation or me in a heart hurt one.  Today, after we kissed HE told ME "I love you". THAT IS EVERYTHING!!! His mind may not remember who I am but I think his heart remembers ♥

Wish all our days were like Wed. but they are not.

Jan 21: Long quiet day for Hubby and I. He barely spoke when he was up and just stared out the windows. When I finally crawled into bed for the night I was careful not to disturb him. I could feel his breath on my back :)
A friend summed it up perfectly for me in a comment
"How blessed you are with the calming affect of breathing to lull you to sleep."
She was so right :)

Jan 22: Hubby asks me quite often if I hear from the kids. Today I talked with all 3, relayed hellos and love to him. He was very pleased :)

Jan 23: Boys will be boys and so will men!! Silly Hubby was sitting on the stairs while I was outside sweeping the porch while he slept. I had no idea he had gotten up and was anywhere around until he grabbed for me and yelled BOO when I walked in the door!! Scared the dickens out of me and I in turn scared him when I yelped LOL!! Served him right LOL!

Jan 24: I cleared away Hubby's supper dishes and asked if he had enough supper and wanted anything else. He replied, "I guess' Then he paused and said "I don't even remember what we had?" Then he laughed about it LOL!!!

Proverbs 17:22..."A happy heart is good medicine and a cheerful mind works healing, but a broken spirit dries up the bones."

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