This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Monday, January 18, 2010

A week of smiles and weak smiles 1/10-1/17

 I attempt to keep a daily journal of the things that make me smile about and or with my husband. My goal in doing so is to keep me focused on the good and prevent me from getting so bogged down in the sadness and frustrations of this wretched disease. Believe me when I say there are more negatives that happen throughout the day that it would be easy to concentrate on them. But, I am choosing to concentrate on the positives. I do not always succeed in my attempt and I try not to use the same generic thing more than once unless I can be specific about something he has done.

I never make new year resolutions but this year I did, and it is as follows pertaining specifically to my husband:

Philippians 4:8 Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable—if anything is excellent or praiseworthy—think about such things.

Jan 10: I got nothing. Hubby slept ALL day. I woke him to eat supper and back to sleep he went. ( I had already used calm and peaceful )

I don't have to give thought to today's smile. Jan 11: Hubby asked me to do something for him and as I passed by him he reached up and "spatted" me then grinned real big. He has such a beautiful flirty smile :-)

Jan 12: Took Hubby to the Eye Dr and didn't get to leave until VERY late. We stopped and had supper. I appreciate the quiet relaxed time we got to spend together :)

Jan 13: Got a "me" day today and enjoyed every moment of it. Hubby was still in bed when I got home. I walked into our room to let him know I had returned and he said, "Hey Babe". Acknowledgement that has been 'lost' and momentarily returned to hug my heart :)

Lewy Body is no laughing matter but some of the things it does sure make me laugh. Jan 14: Hubby was looking outside today. The back deck doesn't get much sun so the uncommon ice and snow we got has been slow to melt. Hubby walks in to ask me, "When did we get all that ice?" I tell him about the extremely cold snowy weather we just had and he says, "hmm" ...as if he slept through it. Every day is a surprise :)

Jan 15: Enjoyed a lunch out on a gorgeous day with Hubby and his sister. Later when I said I had a good time at lunch Hubby said "Yes, that was nice" :)

Jan 16: There are times Hubby has his time of day confused and asks me to make his breakfast more than one during the day. Today I woke and made myself some oatmeal. When he woke he asked me to make him some breakfast and I said 'Again?" As soon as I said it I realized I was the one who ate, not him. We laughed about that and he just shook his head at me!! ROFLOL!! Maybe I have the problem ;-)

Jan 17: Quietly minding my own business and wrapped up in some silly computer game while waiting for supper, I heard hubby walk (shuffle)  into the room and he stood there quietly then unexpectedly YELLED "IS IT READY?!" and cackled like a loon after I nearly jumped out of my skin. What a goof ball! LOL! :)


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