This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Tuesday, February 2, 2010

A week of smiles

Jan 25: Another sleep day for Hubby. I woke him to eat supper and as soon as he finished he went right back to sleep.

Jan26: Two of the grandsons were here and Hubby and I were playing with them. The youngest, aged 2, ran in and out of the bedroom where "PawPaw" was. Hubby, aka PawPaw, would reach out across the bed to Little One and say rawr. Little One would squeel with delight and run away only to come back for more.  I decided to hide by the bed and scare him. Hubby agreed that would be fun. The baby came running in and I yelled RARW!. Not only did I scare the baby, I scared Hubby! We all just fell out laughing!

Jan 27: Busy with something in the kitchen I noticed Hubby standing in the washroom. I looked up to see him just standing there smiling at me :) What made this site even more fun is the fact that Hubby never dresses when he is at home. He only dresses if we need to go to the Dr. So he was standing in the washroom in his underpants and because of his muscle tone loss he has very skinny legs. When I saw him standing there I smiled back (who wouldn't) and asked him where his housecoat was. Hubby looked around and then at himself and said " I guess I forgot it".

Missed a day on my smiles because I've been sick but bless Hubby's heart

Jan 29: Hubby has been concerned about me because I have not been feeling well. In his effort to help me besides aking if I was ok he would bring to me whatever he needed done instead of just telling me what he needed. Believe it or not that IS a very sweet gesture :)

Jan 30: Hubby got me tickled by walking into the comp room and looking at me for a min then out, then a few mins later back in to look at me. He did this quite often throughout the evening. Never needing anything, not upset or anxious, just standing there looking at me. I was about to get a complex hmm :-/

Jan 31: KITTY ROUNDUP! I left my coat outside on the door step railing. Hubby opened the door to retrieve it. In the process the baby kittens shot in the house and he was trying to keep them out. (One got caught in the door and is OK) I chased them down while Hubby held the door. Put one out, one came in, over and over. Hubby and I started laughing and he said, "Those are fast little buggers, huh?" Huff, Puff, yes, they are :)

Feb 1: I can not say it but believe me, It was HILARIOUS!!! :) That was my public status but here is the whole story. Hubby requires assistance with some personal care things. Bathing, shaving, combing his hair, at times getting dressed. I always let him do as much as he can and give him the once over but when he feels he can not accomplish the task Hubby tells me he needs help. This day I was helping Hubby button his pants and zip them. As I started zipping Hubby gasped and got wide eyed. I went into a panic thinking I had just caused injury and was at a loss as how to proceed or retreat. Hubby busted out laughing at me. I smacked him a good one in play. He can be such a goofball!!

I am so happy that Hubby has had some wonderful days. I am trying to appreciate them all. Things have been on the upside of this Lewy roller coaster ride and I am truly grateful.

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