This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Wednesday, February 23, 2011

Afraid to Fly

I keep reminding myself that last Saturday, was a GREAT day!

I need to keep reminding myself because,
ever since then, Hubby has been wiped out.
Physically and mentally.

Hubby has been sleeping a lot more. He sleeps all the time so how can that seem possible?
I have to wake him to eat and use the bathroom but there are times he wont even budge to do those.

When he has been awake he has been in a huffy mood. I'm not sure why but I remain calm and agree with him about whatever.
1: He will forget what he said,
2: He can't walk far to go anyplace if he talks about leaving,
3: He isn't hurting himself or me
4: He thinks I'm a pretty good ol gal for taking his side, especially against that mean woman that has him locked up here (yep, that's me)

I win all the way around :)

Conversation is NILL and what conversation that there is, is completely off the wall or barely coherent.
Last night Hubby became upset with the fact that the people driving the airplane weren't keeping it steady while he tried to get up and walk to the bathroom.
This revelation came after a few earlier questions about
how did we get on the airplane
when did we get an airplane.
He was serious in all of these remarks.

My replies, I thought you were afraid to fly. All 3 times.
Hubby never acknowledged my response and I didn't have to argue that we weren't and didn't, trying to prove I was right.
Smooth flying for me; I love to fly ;-)

I just hate that these times of conversation are fading faster and faster.
Trying to piece together the ramblings into something understandable is a challenge to my own mind.
My heart is holding up well. I'm dwelling on the good things.
Even when Hubby's feelings of doom and mentions of not being here much longer are the topic of the moment.
I just look at him and tell him,
"You can't"
He asks why
I tell him "You better stick around at least until that new baby gets here. "
He always smiles and his hazel eyes shine.

1 comment:

  1. Dear Kathy... I really don't know what words I could say to help. Lewy Bodies is such a uninvited guest, showing up at the worst possible time (every time is bad.)

    Sending you big hugs and letting you know that you and Hubby are in my thoughts.



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