This is dementia. It's not just a memory problem.
What you read in this blog is purely my own personal experience in dealing with Lewy Body Dementia every day.

This is not meant to offer any medical or legal advise.
I have no professional training in care giving or experiences in formal writing.
I'm just a woman that loves her husband deeply and wants to provide him with the best quality of life he can and chooses to have.
My prayer though this is "Lord, What am I learning from this; how can I use it help someone else and to glorify You?"
If just one person finds comfort in this public blog. I will feel like it was a success.

Sunday, February 20, 2011

Showering the Baby

I've taken a couple three of days off from internet activity to concentrate on hosting a Baby Shower for My Baby!
Hubby and I are getting ready to welcome grand(son)child #6  and we are SO excited. OK I am so excited but Hubby and I are one so We is I and He is We, you get the idea.
I don't think Hubby fully understands and if he does it's hard for me to recognize it.

Hubby had a downhill turn for a couple of weeks. We dealt with things as they came and didn't come. To be honest I wasn't sure how the Party day would go with Hubby's decline. I know that lots of extra activity confuses him more than usual.  Hubby has a very difficult time processing too much commotion and it throws him like throwing water in a working toaster. It starts to short circuit and spark.

I offered to host the event because getting away from here with Hubby seems to be a mighty big challenge these days. Bringing the party to us was the better choice, Or so I prayed :)
I busied myself preparing for the event, Sister in law, Bless her heart, offered me transportation to shop for needed supplies while Aide was here. Niece was placed on the decorating committee. Poor Niece had to endure the craziness that is known as "Aunt is expecting company get your butt out of bed and help!" Yeah, it gets a little tense and drill sergeant-ish, just ask our Children. They will attest and can tell stories, on second thought, don't ask them ;-)

I love that I serve a Great Big God and that as my Father he hears my smallest pleas (please). Let us have a good day. We did. Not only was it a good day I would almost consider it a GREAT day for Hubby.

A cooperative and low maintenance Hubby for a day. No extra laundry, confusion didn't seem off the wall and not stressful for Hubby. Walking was much improved, slow and at times, upright and upright is something! Hubby walked into the room closest to us as we congregated for the festivities. I prepared him a plate of goodies and he seemed to enjoy them. After we snacked Hubby joined us to watch while games were played and gifts were opened. Although he wasn't an active participant, he was a present observer.
(Hubby even let me talk him into wearing pajama pants with his robe )

Snacks, gifts, games, pictures and lively conversation didn't phase Hubby in a negative way. God is GOOD!
Kathy, Hubby and Beautiful Baby with baby <3

So today Hubby sleeps. It looks and sounds like a restful sleep :)
He woke a few times to go to the bathroom and have breakfast. Supper brought him MUCH confusion as he didn't understand why we needed to eat at that hour. I like to eat at any hour as my picture shows! LOL
I realized looking at that I HAVE to take control of ME and get my head and heart on the same page working together for me. I count for something, why have I been so neglectful?

Today I catch up on a couple of days of internet fun but it feels like I've been gone for a long time. The internet highway is sure fast and you can get passed by and be left behind!!

I've branched out a little bit on my blogging.
Here, I have met a few caregivers. I love the support we can offer each other in our responses.
Caregivers are a uniquely and intricately woven group of people. Like a cord, alone can be torn in two but braided and banded together, strong yet flexible enough to keep each other supported during the times of caregiving hardships and, celebrate with during times of caregiving triumphs and moments of joy.

I've started to Tweet.
I know, you may think I've gone cuckoo but I decided to give Twitter a run.
I have a lot to learn yet on Twitter but I am hoping that I can use it as a tool to educate others about Lewy Body Dementia and help another Caregiver that, like I, searched for something, anything to help them through this often scary, confusing, lonely and isolating life known as caregiving.
I've learned so much about Lewy and Caregiving yet still have so much to learn about it.
I just want to share and encourage.


  1. Yay! I'm excited for you being able to pull off a party and have everyone enjoy themselves, including Hubby.

    You are so beautiful and one of the people that helps me during my rough days.

    I look forward to reading your posts on caregiving.com! Make sure you post them here on your blog so that we don't miss reading what you have to say.

  2. Hi Sue,

    We DID have a great time. And had some big ol belly laughs to boot!!
    It does a heart GOOD to laugh like that :)

    TY for your kind words. YOU always encourage me. Thank you for being a braid in my rope! Even on the days I want to use it to hang myself LOL ;-)

    Please do check out the site at Caregiving.com.
    I've really enjoyed being there. This place is home though so I write here firsts and copy past there :)

    Hope your day is wonderful if in no other way but peaceful. :)


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